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Day 6: F R E E D O M


Day 6 is a day of FREEDOM.
I gots style yo! And I gave a 100%!

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Day 4: A Step Back to Go Forward


Day 4 saw A Step Back to Go Forward in Hope by the Way of FAT.
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Day 3: Out of the ICU


From Hope by the Way of FAT comes Day 3: Out of the ICU.
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Day 2 Entry is Up


Sorry for the delay, but pictures and a short blurb about Day 2, the day after surgery, is now available.
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So Far, So Good!


Things are going well here. Surgery is done with no complications. The long road to recovery is ahead…
Now that things are looking a little better, here are some sights from Hope by the Way of FAT.
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Times Like These…


With parenthood comes the best and worst of times. I’ve thought about what to say for this post for some time, but now the words fail me.
All I know is I want my son to have a chance - a chance at freedom, a chance at normalcy, a chance to live.
I’ll keep this [...]

Mental Distractions from Good Intentions


Been transitioning work blogs from Movable Type 3 to Movable Type 4 for a few hours, and it’s a welcomed mental distraction while listening to some gnarly music. Had to switch out the NG tube last night for cleaning. Quite a bit of screaming, crying, and gagging. I hear the premiere of LOST was on [...]

Medical Math Problem


Do you remember how to solve math word problems. Let’s try…
To prevent respiratory syncytial virus (RSV), a monthly shot of Synagis, is highly recommended. HMSA covers 80% of the cost of this dose of pure RSV antibodies while the family pays Pharmacare the remaining amount. For an approximately 13-lb infant, the cost [...]

NG Tube Feeding Is Traumatic


Using an NG tube to feed an infant is pretty traumatic, both for the infant and family members. Inserting the tube is the worst part and keeping the tube away from prying hands is tough.
How long does this have to go on? We’re only on day one.
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The Worries of Parenthood


Heart murmur. Pediatric cardiologist. VSD. Two medications. RSV vaccination? Lots of hope and love.
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